Profiles in Caring EB documentary

[goodnightmoon]

Warning: There is imagery that might be disturbing to sensitive souls.

Part one: http://www.profilesincaring.org/movie.asp?szMovFl=eb1
Part two: http://www.profilesincaring.org/movie.asp?szMovFl=eb2
Part three: http://www.profilesincaring.org/movie.asp?szMovFl=eb3

Comments

[twisting-path.livejournal.com]

Thanks for sharing this, Logan. Not only interesting to see what EB families like your own go through, but uplifting, too, with the new advances in research, though waiting for the research to lead to actual treatment... I hope it is soon, very very soon.

Carolyn

[1-mad-squirrel.livejournal.com]

I tend to be, as you say "sensitive", but how could I refuse to look at what your children live with every day?

Bless you, Logan, and your "Butterflies".

* gentle hugs *