Recent stuff about EB in the news

[goodnightmoon]

http://videos.howstuffworks.com/discovery/30570-one-step-beyond-epidermolysis-bullosa-video.htm#mkcpgn=fb3

How incredibly brave of Bruce to bare all for this documentary. Rock on, man.

http://www.satyajewelry.com/catalog/charity-butterfly-c-115_159.html?page=1&products_id=1286

Satya jewelry has added new items to their butterfly collection, of which 100% of proceeds go to EB research.

http://www.tastytshirt.com/angiesmith_wvneck.html

3 dollars from the sale of each shirt goes to DebRA (only this one design)

And last but not least, Phyllis Hilton, the found of DebRA, passed away recently.

http://www.getbracknell.co.uk/news/s/2059474_debra_founder_phyllis_hilton_has_died_aged_81

Comments

[1-mad-squirrel.livejournal.com]

Since they've isolated the gene responsible, does that mean that one day gene therapy for EB is possible?