goodnightmoon: Mulder 2 (Default)
[personal profile] goodnightmoon
A friend of mine started a challenge to blog every day for the next month about things you're grateful for, so here is mine.

Baby girl (who will be 11 in six weeks!) has a pain managment consult in Nashville on Feb. 7th. Talking to the clinic coordinator was *amazing*. To be understood on that level, it was such a relief. To say, "medicine X helps with this, but not with ____" and have her fill in the blank. She *knew*. She *got* it. I mentioned the sleep issues and having a pending referal to the sleep clinic and she said oh no, don't worry about that, we'll take care of that here. And how we need to try to find a low air loss bedding system and we need to try different ones to see what works and she was like, don't worry, we'll set that up. C. is so excited to finally have this appointment, the time can't go by fast enough.

In the mail today was the most amazing package from [livejournal.com profile] dreamerofmalta I am the proud owner of my very own hand knitted cunning Jayne hat, and the most awesome illustrated Dr. Who storybook.

I am blessed beyond words.

(no subject)

Date: 2008-01-15 04:26 am (UTC)
From: [identity profile] rachel-wilder.livejournal.com
I'm so glad to hear about the consult and the challenge is a really, really great idea. I could use a little more of that right now--some days it seems hard to remember there are things to be grateful about.

(no subject)

Date: 2008-01-15 04:39 am (UTC)
From: [identity profile] dragontdc.livejournal.com
That's great!

BB

(no subject)

Date: 2008-01-15 05:01 am (UTC)
From: [identity profile] betagoddess.livejournal.com

That's wonderful news about the consult for C! =>}

::hugs::

(no subject)

Date: 2008-01-15 05:06 am (UTC)
From: [identity profile] humming-along.livejournal.com
isn't it though? A preteen. Oh man. I'm not even grown up yet myself, how did I wind up with an 11 and 9 year old???

(no subject)

Date: 2008-01-15 05:43 am (UTC)
ext_27009: (Dancing Aliens)
From: [identity profile] libgirl.livejournal.com
Oh this sounds wonderful for you both! It's fabulous that they're going to be able to combine some of this stuff for you guys!

YAY for the Dr. Who goodies and the Jayne hat! You have good friends because you're a great person. :)

I was thinking you of you and the kids today :D.

Much Love...

(no subject)

Date: 2008-01-15 06:07 am (UTC)
From: [identity profile] bardsmaid.livejournal.com
How very cool to have finally hit upon someone who gets it. Few things bring such joy... and such relief! I hope this results in well-deserved progress for all of you. And wow, all this time we've been focusing elsewhere, your girl has been growing steadily along. :-)

(no subject)

Date: 2008-01-15 09:42 am (UTC)
From: [identity profile] siberian-skys.livejournal.com
I'm so happy for you and C. It has got to be such a relief for someone to finally get it.

(no subject)

Date: 2008-01-15 02:20 pm (UTC)
From: [identity profile] roseyniswitrin.livejournal.com
I'm so glad that went well for you and C. I'll send some energy that everything falls into place the way it needs to.

And 11!! I know...the boys just turned 12!! It's crazy how fast the time goes.

(((you)))

(no subject)

Date: 2008-01-15 04:39 pm (UTC)
From: [identity profile] 1-mad-squirrel.livejournal.com
Oh that's so wonderful C is finally getting that kind of help.

Blessings on the little girly, and you and W.

(no subject)

Date: 2008-01-15 10:54 pm (UTC)
From: [identity profile] paragraphs.livejournal.com
Something positive every day--that is a great challenge, one we could ALL stand to do. Looking forward to your daily cheery posts. That is great news for C. And you too--someone on your side, promising help for your daughter. Good.

(no subject)

Date: 2008-05-28 03:38 am (UTC)
From: [identity profile] thecatsmeowww.livejournal.com
Good for something positive for Miss C.


YAY for a Jayne hat!

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goodnightmoon

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